The nurse came out and said they were doing the 2nd coronary. Not sure what that really means, but she said he is still doing fine. She would come back out about 1:00 for the next update.
Jalee is the mom. Kai is my 13 yr old son. Linnea is my 7 yr old daughter. We have all recently been diagnosed with Loeys-Dietz Syndrome, but only I have had the DNA test to prove it as of now. Both kids will be tested very soon. I had to wait 10 weeks for my test results. Now that they know where my mutation takes place, perhaps it won't take as long to confirm if the kids have it. I am sure Kai will be positive and think Linnea will be too.
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