FINALLY! We have dates

First thing this morning, Linda from Dr Moon's office called me and said she had spoken to Dr Huddleston's office and figured it out. Kai will have his Pre-op down there on Thursday Sept 4th and his surgery would be Friday Sept 5th. My Pre-op down there will be Monday Sept 8th and my surgery will be Tuesday Sept 9th. I am supposed to receive another phone call from Huddleston's office probably tomorrow w/ more details and then from some other departments about specific instructions for our pre-op and surgeries. Linda said she does not take care of getting the authorizations. There is another lady in the office that does that and she is not in this week, so she would probably call me next week w/ some questions or information.

So, today has gone pretty well. I was much more relaxed and able to concentrate and get some work done (with the exception of having some internal plumbing problems more than likely caused by all this stress), so I finished my work up at home this afternoon. It was nice to get something accomplished today.

I tried to call Wemlinger's office to see if they got what they needed from Braverman's office, but couldn't get thru, so I decided to call Health Alliance myself and find out if they had what they needed. Kathy from there was very nice. She told me what she needed and asked questions about Loeys-Dietz since she had never heard of it. She was very shocked to learn that including the kids and I there were only 186 people worldwide with it. Braverman's office was already closed, so I will call them tomorrow to make sure they fax the needed info to Health Alliance. Kathy said once she receives it, she sends it to the medical review board and they take care of the approval/denial and there shouldn't be anything else needed. I gave her my surgery dates.

I feel so much better now mentally, but I will not totally relax until I know all red tape has been taken care of. I also still need to call Social Services at the Children's Hospital to get a referral from a Social Worker for the Ronald McDonald house for us to stay in during Kai's hospital stay. I think I will also call the hotel we stayed at when we were down there in April and see if they will give us the same rate as the Parkway (which is right there on the hospital campus). After all, I am one of their "Rewards" customers. I am not holding my breath, but it can't hurt to ask. We really liked that hotel and it is close, so what the heck! Worth a try. All they can say is no, then we can try the Parkway. It is still $75 a night, but that's cheaper than anything else.

Pegram's office called today and said Kai's Iron stores are a little low, so they want him to take 150mg of Iron polysaccaride and 1000mg of Vitamin C together to help build up his iron stores for surgery, so I guess we will get that tomorrow. I think I will call Wemlinger's office tomorrow and find out if they plan to do that blood test on me. I need to have my thyroid checked this month anyway since they found a "nodule" on it (already had a biopsy and it was benign). Yeah, I know, what is NOT wrong w/ me?!?!?!? It really sucks, but there are a lot more things that could be a lot worse, so I am thankful for that.